ALBANY, GA (WALB) –You may remember 12-year old Lottyn Bates, a Tifton boy with a rare neurological disease called GAN or Giant Axonal Neuropathy.
As his scoliosis progresses, his dependency on a wheelchair grows. Tonight, the community is working to raise money to buy his family a vehicle that can haul his chair.
For 12 year old Lottyn Bates, getting in and out of the car isn't as easy as it used to be. He just started using a wheelchair in May, but he also has Scoliosis, so its safer for him to sit buckled in the motorized chair, rather than just use a seat belt in the car.
"He doesn't even get to use it and its so new to him and comfortable and really helps out with his scoliosis he can recline in it," said Magaen Bates, Lottyn's mother.
But the chair is too heavy, and at this point his family doesn't have the vehicle to transport it. "We keep his new wheelchair at school, so when we get up in the mornings we take him in a manual chair so we get him out of the manual chair and put him in the power chair," said Bates.
So a teacher from Charles Spencer came up with a way to help the family. "We decided that after they won the Pepsi Refresh thing, they needed transportation," said Mandy Stone, a teacher at Charles Spencer.
Teachers and friends formed the Love for Lottie committee and six weeks ago they hit the pavement, searching for sponsors and volunteers to help make the event a huge success. "We've been out selling T-shirts and we've passed out flyers for the event at all the schools, we've put a lot of time into it to make sure it is a good event," said Bates.
The Walk-a-thon and fall festival will feature tons of activities, like arts and crafts vendors, raffles, bands, food, a cake auction and even a dunking booth where you can dunk the principal of Lottyn's school.
Lottyn says he cant wait till he can drive his motorized chair into and out of the van all by himself. "I can do everything by myself, like I did before," said Lottyn.
If they raise enough money for that vehicle, Lottyn says he wants it painted yellow on the outside and red on the inside, his two favorite colors.
LOVE 4 LOTTIE WALK A LOTTIE- WALK-A-THON AND FALL FESTIVAL