One heavy heart for two sons - WALB.com, Albany News, Weather, Sports

One heavy heart for two sons

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"I'm just in a bad situation right now," says Tanya Jones "I'm just in a bad situation right now," says Tanya Jones
Javon has a cancerous tumor the size of a golf ball on his brain stem Javon has a cancerous tumor the size of a golf ball on his brain stem
Jacarein suffers from severe respiratory problems Jacarein suffers from severe respiratory problems
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By Len Kiese - bio | email

September 25, 2008 

ALBANY, GA (WALB) - An Albany mom is reaching out for help. She has two children-- both with life-threatening conditions.

It's an emotional handful that caused her to leave her full-time job as a certified nursing assistant to care for her children.  However, it's getting too expensive to handle it all.

Tanya Jones is the mother of two sons.  One is 15-year-old Javon. "He was in the band. He was a saxophone player," said Jones from Javon's bedside.

Javon was pretty quick to give his mother a reminder. "And track," reminded Javon from his bed.

A track star and saxophone player at Monroe High School is now unable to say much or move.  He's confined to his bed. Up until recently, he was healthy.

"Hardly ever complained of a cold," said Jones. One day Javon started complaining of a slight headache in the back of the head. Doctors thought it was a severe sinus infection or vertigo. "They finally did an MRI and found the tumor," said Jones.

There's now a cancerous tumor the size of a golf ball on his brain stem. If that's not enough for a mother to bear, there's also 4-year-old Jacarein. "My 4-year-old was diagnosed with Pfeiffer Syndrome which is a very rare syndrome. 1 out of 25,000 children are born with it," said Jones.

Jacarein was diagnosed with Type 3 Pfeiffer Syndrome, the most severe form, and suffers from severe respiratory problems.  He's already undergone two intense surgeries. Jones says the outlook for both sons doesn't look good. "My 15-year-old has one year to six months. My 4-year-old has eight years," said Jones.

There's precious time left with both sons. Understandably, it's an emotional situation for Jones. "I didn't ask for this. Lord knows I didn't. I didn't ask for any of my kids to be terminally ill and they both are," said Jones.

It's also causing a financial strain. "We're in a situation now where I had to stop working," said Jones. The kids have to be taken to Augusta for medical treatment six times a month. Add to the trips and medical bills another $700 a month for rent plus more for utilities.

"If I could change it around I would. I'm just in a bad situation right now," said Jones. So to ease a bad situation, Jones just hopes some help will come along.

"Some small help," said Jones, "just a little help from the community and I haven't been able to get any." With two terminally ill sons, she welcomes any kind of support to keep going day to day.

"I just take one day at a time," said Jones.

Two weeks ago Javon stopped breathing on his own. Radiation and chemotherapy did not help his condition. His brother will soon have to undergo another major surgery.

If you'd like to help in any way, call 229-439-2165.

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